GB was diagnosed with autism six months ago. My reaction was one of shock. That was followed by months of not changing much of anything. I have an autistic nephew, besides my special ed degree, so it wasn’t that I didn’t what I needed to do. It was more like my brain refused to settle in one spot long enough to think anything through. In February, I managed to contact the DDSO to get a medicaid waiver. Since she would be 8 before the paper work was done, it would qualify her for lifetime services. I was assigned a service coordinator who has been on top of the process. I have started, very slowly, to look different options to improve her quality of life. I fought the bus company. I signed her up for Challengers softball. I enrolled her in Special Olympics. Today is another milestone. GB starts a social group today.
Since I know the various needs of autism and am aware of the programs available, I started to wonder why two weeks of work took me six months. I came to the conclusion that I was working to incorporate new information into my mental picture of GB. I think, at least to some extent, all special needs parents go through this process when they receive any new diagnosis, even when they “should” have seen it coming. It is not a bad thing. Even though your child hasn’t changed, you have. You now have new ways available to help your child. True, you mourn another loss, a piece of your child that will never be typical. That is eventually offset by all the new tools that are available to help your child. .
Wish us luck on our new adventure today.