Mary, Joseph, and the Shrink

Our latest worker, aptly called Mary Poppins by my friend, came to see the shrink with us this morning. I knew Mary Poppins was clueless and I planned on calling her supervisor this afternoon and either getting a different worker or discontinuing the agencies services.

The shrink was pleased with how well GB was doing and Mary sat there quietly. That took 10 minutes of our hour. The other 50 minutes were devoted to Hope. Honestly, I am not quite sure how everything fell apart, but when we were done with Hope, the SPOA application was put on hold, Hope was off the anxiety medication and we were coming back in three weeks.

Nothing has changed with Hope’s behavior. When she is interacting with me it has actually gotten worse. I feel like not only wasn’t I being heard by Mary, but now I was also not being heard at the shrink’s. Joe (The Dad) won’t talk about anything beyond “now”. I am not willing to waste another three weeks with everything staying the same or getting worse. Last week, Hope’s service providers took 12 hours of my time, plus numerous phone calls to arrange details. With SPOA paperwork derailed, there will be no RTF or RTC this year. Life will just go on.

I can not and will not do it anymore. Joe has Hope. I will no longer discuss Hope, answer calls about Hope, go to meetings about Hope, make plans concerning Hope, or schedule Hope’s appointments. I won’t even call to get Mary Poppins replaced.

All our services for Hope are time sensitive. We are midway through our time allotted for all our outside help. Nothing has changed. Reams of paperwork filled out, endless hours of meetings and therapy, and nothing is better. I am willing to work hard for Hope to become a functioning part of our family. I am done playing the system’s games.

And if that brings out the Trolls, makes me evil or a failure, so be it. I am already screwed.

Snow Day Again: Good Things Happened Anyway

Today is the sixth consecutive day the girls have been home. Good things happened anyway. The Dad and I went to speak with the psychiatrist(word is too long. That’s why I usually call them shrinks) who did the psychiatric evaluation on Hope. It is now official- Hope is RAD. She may also be ADHD. We will be weaning her off the Risperdal over the next three months starting with the morning dose. Good luck Mrs. VY Teacher. After she is off the Risperdal, we will have her evaluated for ADHD. Doesn’t sound like something to celebrate. Ah, but there is more. Hope’s VCS (Very Competent Shrink) has agreed to treat GB, so instead of a 5 1/2 hour round trip to Manhattan, it will be a 2 hour round trip to the little city. She also said that the next generation of Risperdal is now available in a child’s dose. It doesn’t have the weight gain or the prolactin problems Risperdal does. YIPEEEE! She is sending me more information. I can actually dream of a stable GB again. Granted, she will still contend with FASD and ASD, but that will always be true. No more psychosis! If my body was working better, I would be dancing. Good thing this is a blog post- you can’t hear my tone deaf singing 🙂

A Visit to the Shrink

Yesterday was our visit to the psychiatrist in Manhattan. GB likes these days because we spend them together, she misses school, and we have Mickey D’s after our appointment. Hope got very excited, because GB did. We spent an hour and a half with the shrink. He was impressed with how resilient Hope is. Since we have had her less than a month, he recommended we not  change medication (she is on risperidone) and not do any evals until January.

We spent a lot of time talking about GB’s instability. He increased both the lithium and the Namenda and said that would help, but she will still experience psychotic breaks. Since she had to be taken off the risperidone because of serious side effects, he won’t but her on any atypical anti-pyschotics for at least a couple of years. We need to avoid stressful (for GB) situations until we get her stable again. So for right now, soccer, dance and gymnastics are gone. She seemed to understand that they were too hard for her right now and gymnastics is the only one she expressed disappointment with missing.

Hope held up well through the appointment, but lost it on the way home. She finally tantrumed herself to sleep and the last hour of the car ride was peaceful. The nap reset her and the girls did well the rest of the day.  We kept things quiet and they played in their kitchen. watched a little of a Care Bear movie while snuggling, ate dinner, took a bath, and read a book. They were both asleep before 8 pm.

We are still waiting for a call back from the therapist.