I wrote about our attempt to treat GB’s primary enuresis by chiropractor in https://adoptingspecialneeds.wordpress.com/2012/09/18/did-you-know/ . We are down to visiting the chiropractor once a week. GB has had four dry nights in a row. I knew that leaking through the pull-ups had been bothering her. I hadn’t realized how much it was bothering her until she asked me this morning when she could stop wearing the pull-ups.
After thinking about it, I told GB she could stop wearing pull-ups whenever she wants. I am sure she is making progress and her happiness and confidence is just glowing. I am delighted I gave a new (to me) idea a chance and it worked out so well.
GB is still dysregulated and manic. After trading a dozen emails back and forth, the psychiatrist and I agreed on a plan. I am not doing the happy dance. GB has been on every atypical antipsychotic currently available. The only two that stabilized her were risperdal and invega (A metabolite of risperdal). Unfortunately, Prolactin levels in the 40’s are not acceptable in an 8 year old girl. So we are left to try traditional anti psychotics. Tomorrow morning, GB starts on loxapine. It has black box warnings and we didn’t want to start her when we would have to rely on the school to monitor her.
Parenting special needs children is often like this- there is no good solution. You are stuck between a rock and a hard place and have to chose between two lousy options- in this case, no treatment or risky nasty side effects. I made my choice and I am praying that God will wrap His arms around her.
Bipolar is back. Not that it was ever really gone, but the Invega controlled the bipolar so well, the bipolar rarely made the radar screen. GB has only one volume at the moment- loudest. The pressured speech makes it hard to understand what she is trying to say. She is only completing one thought in four. The rest gets lost in the whirlwind of mania. She has no attention span. My biggest dread is that as the mania cycles higher and higher, she is more likely to experience psychotic breaks. Please pray for her… she doesn’t understand what is happening and is scared.
This was one of the few relaxed moments GB has had in the last couple of days. Pressured speech, lots of tears. I am afraid the 1/2 dose of Invega is not holding her. The place she is in doesn’t allow me to be silent when I can’t be nice. I am still making Day 2, but I think my niceness is coming from God. I know it is not in me.
GB lost it late this afternoon, while transitioning from the pool to dried and dressed. We made it through, but while getting changed ourselves, The Dad and I considered not going out to dinner as planned. I went downstairs and discovered GB had put on her weighted vest and gotten her Ernie out and was cuddling him. She was completely regulated and had little difficulty handling dinner. When I complimented her on pulling herself back from her meltdown, she said, with great dignity, “Ernie and my vest ALWAYS help”. I love stability! It makes the FASD and Autism SO much easier to live with.