Progress for GB

GB is back under the care of the first psychiatrist who treated her. we drove to Manhattan Wednesday and spent over two hours with him. GB did an awesome job explaining to him what she is currently experiencing with auditory and visual hallucinations and describing what life with Hope is like for her.

The psychiatrist had two major suggestions. He wants a neuropsych done ASAP because he is of the strong opinion that the psychoses is a major factor in her current intellectual functioning. Also, he is referring her to a clinical trial aimed at adolescents ages 13-18 with schizophrenia. Schizophernia has been discussed since GB became verbal enough to talk about her hallucinations. He is still sticking by the diagnoses of Early Onset Bipolar I with psychotic features but the word “schizophrenia” is as scary as ever.

He recommended referring her to a nationwide advocacy program, YIA. I had never heard of them and started by googling them. The advantage seems to be that this organization does not try to draw sharp lines between individual disabilities in children who are dealing with multiple disabilities. It requires going through the qualification process once and then covers her for life, also a plus.

I am hopeful we are once again on the path to getting treatment to help GB stabilize. For the first time in long time, I am optimistic.

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